Friday Update

The last 24 hours have been challenging.  Jonah's been throwing up and dry heaving for most of today.  Some of it is a response to different medicines and some of it is just his body getting used to the fontan.  We're still in the CVICU tonight.  But they are thinking we will move to the 10th floor tomorrow.  That will be a big step.  More tubes will come out and he will be more mobile.  He was talking a lot more today.  At one point he looked at me and said, "I ready to go home, Daddy."  He's definitely getting tired of being in the bed.  He's very interested in the possibility of riding a wagon around the floor when he is feeling a little better.  But today was all about drinking small sips of Sprite and waiting to see what would happen.

We continue to have great nurses.  We've had the same night nurse for 3 nights now and she was exceptional.  We have a different nurse tonight but she's doing really well right now.  Our child life specialist came by again today for about 30 minutes and just discussed how he's doing and how we are doing.  She has been telling us about a few post surgery opportunities for Jonah down the road.  There is a camp he can go to with other "fontans".  There is also a Reunion Day event where families who have stayed in the hospital in the last year can come back and visit with the doctors and staff.  It sounds like a fun event.  They are really trying to make this as pleasant as possible.  The only thing that has thrown us off is this morning I went down to the cafeteria and there were no cinnamon rolls.  Apparently they do not have cinnamon rolls on Friday, Saturday, or Sunday.  All I'm saying is a little heads up would have been nice :)

Katie's Momma Bear sense is in full effect.  You can easily see how the Lord has prepared her for this week.  She is pretty much laying in the bed with Jonah as much as she can.  The surgeon commented about that and said it helps the healing process.  And she's right there whenever he needs anything. 

The Lord is providing here.  I don't know that Katie and I are mentally out of the fog of being in this situation right now.  Jonah needs so much attention right now and it is keeping us busy and in the moment.  But we are being comforted.  We are being fed.  And we are being prayed for.  Many of you are praying for us and providing food and other things.  Thank you.   It is coming through. 

View of the hospital.

The only restaurant in walking distance