Procedure Update



Well...we had planned to be in the ICU this weekend, but that is not where we are.

Wednesday night J was not acting like himself.  He didn't eat dinner!!!!  That is not my boy!  He also had a fever.  He continued to decline all day Thursday.  He had fever on and off. He didn't eat much and he slept a lot.  He would wake up crying because he just did not feel well.

I spoke to the nurse at his pediatrician's office a few times that day and also a lady at the hospital.  When he was still running a very high fever at 4:30, we decided he should not have the procedure on Friday.  I was sad that we weren't getting it over with, but I knew there had to be a reason he wasn't suppose to have it that day.

His fever finally broke Thursday night and he woke up Friday feeling fine.  I guess it was just a bug or something.  I spoke with his cardiologist (Miss Dr Jean) Friday afternoon.  She said that since they didn't do the heart cath Friday, they (she and another cardiologist that would be doing the cath) looked at his file again.  They decided that they wanted to add an MRI.  The reason is because they are used to doing the Fontan on kids under the age of 3.  Since he is almost 5 and his insides are special, they want to make sure they know exactly what they need to do during the surgery.

She doesn't really like the fact that they have to add 30 minutes to his anesthesia time, but she still feels like it is the right thing to do.  So we are just waiting for them to reschedule.  We are pretty sure it will be this Tuesday or Friday.  They will be doing the heart cath, MRI, and abdominal ultrasound.  I was very happy to find out that they have room for both of us to spend the night with him in the ICU.  I'm so glad we get a run through before his surgery. 

Please continue to pray for us during this time.  We are all really looking forward to our vacation that is coming up!

Katie